Anemia is a blood disorder that causes the blood to not carry enough oxygen to parts of the body.
Shannon
suffers from a rare type of leukemia known as acute myelogenous leukemia (AML).
Early symptoms of the disease—fever, fatigue, paleness, bone and joint pain,
and infections—are easy to confuse with more run-of-the-mill illnesses like a
cold or the flu. That’s what Shannon’s mother thought.
“I
started noticing she was very tired and fatigued, and it wasn’t normal,”
Shannon’s mother, Odiney Brown, told ABC News. “The day we found out, we
immediately admitted our lives had just changed completely.”
AML can
quickly go from bad to worse. In order to recover, Shannon will need a bone
marrow transplant, and like so many others with the condition, she now
struggles to find a donor. Finding an exact match won’t be easy, either,
because Shannon is African American and Hispanic—two highly underrepresented
donor groups.
Even in
the event that a donor is found, it is likely that Shannon will need additional
treatment. “It is generally an aggressive disease that requires chemotherapy,”
Shannon’s doctor, Dr. Barbara Asselin of Golisano Children’s Hospital at the
University of Rochester Medical Center, told ABC News. “The first hurdle is to
see if we can achieve a remission in the bone marrow and don’t see any more
leukemia cells.”
Asselin
says the chances of recovery are less than other forms of childhood leukemia,
but that she remains optimistic about a cure. For now, Shannon is trying to
enjoy life as a normal 11-year-old girl, watching movies at home and chatting
online with friends between treatments.
Read more
from ABC, or find out how to become a donor through the National Marrow Donor
Program.
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